
I feel like many doctors resist Ehlers Danlos Syndrome (EDS) diagnoses for their patients. On the surface, it baffles me why anyone would resist an obvious answer to a complex question. But EDS isn’t a sexy diagnosis, for a variety of reasions.

I feel like many doctors resist Ehlers Danlos Syndrome (EDS) diagnoses for their patients. On the surface, it baffles me why anyone would resist an obvious answer to a complex question. But EDS isn’t a sexy diagnosis, for a variety of reasions.
On to a new oral drug. lefluf something, IDK, i’m not allergic to it and it’s making me a little tired but not poisoned. And many more steroids.
I’m not going on LJ anymore. Everything’s on Dreamwidth (jenrose) and here, and I’m on Tumblr.
Sometimes it’s really hard to write about other people’s happy times when it reminds me of when I was strong and thought I could do almost anything.
Sometimes it’s an escape, but sometimes it’s just a really rough reminder of how hard I’m struggling right now.
The true answer to “How are you” behind the cut. It ain’t pretty.